Posts in Caregiving
Overpacking (or as subtitled by Mo "A Stellar Wife")

I used to travel for work a LOT.  Back before my son was born I was a consultant for a company that had me on the road at least one full week a month.  Some jobs I would stay onsite for weeks and only come home for weekends.  I don’t travel as much now, but packing has gotten harder.  The older I get, the harder it is to leave home and the more of my home life I end up wanting to take with me.  Of course, you can always buy what you need if you forget it, but many of the things I use and love are things you can’t go to Walmart or Target and replace. (That is a whole other post, lol).   As a result, I am a classic over packer.

Every what-if scenario gets consideration.  It’s springtime and sunny so short sleeves for sure except that I always get cold and it might rain so long sleeves and maybe we will go somewhere nice for dinner but I’m not sure if it will be really nice or semi-casual, so I need several choices for dress up.  Don’t even get me started on the pants and shoes to match these choices, or the pile of workout clothes that still need to be tucked in there somewhere…. This last trip also included all my rug-hooking clobber, so this time I actually needed a second suitcase to cram it all in. 

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It's Quiet... Too Quiet...

I'm back from my little vacation that was more like a staycation, even though I was in a different city.  It was nice to get out of my house for a little while and escape this pit that all of us have probably experienced around the time of diagnosis – the hole you fell into where it was ALL PD, ALL THE TIME.  It’s all you think about and worry about and talked about and stress about and it becomes an inescapable thing.  Lucky me, I got to climb out of the pit for a little while and breathe some non-PD air.  Unfortunately, I left Mo in the pit for a little while.  There is definitely some guilt that goes along with the notion that you the care partner can exit the building, while your Parkie is stuck.  However, I think we have to let the guilt go if we can, because those moments of ‘freedom’ might be few and far between, and we have to accept the respite from stress when we can get it.  And let’s face it, your Parkie may be grateful for the quiet and break from the constant chatter about PD as well.  It might be nice not to be reminded about Parkinson’s every minute of the day.  Have you taken your pills?  How’s your tremor today?  Are you having trouble swallowing?  Is that dosage of C/L still working?  You need to exercise.  When’s your next neuro appointment?  So, maybe a break for Mo, too.

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The Things We Keep

  I am visiting my parents in my hometown this week, in a little tiny town most people have never heard of.  I’ve spent my life just telling people I am from St. Louis, although it is a 45-minute drive away.  The past few days have been spent driving around to places that look only partly familiar to me.  I grew up here in the 70’s and 80’s when there wasn’t much of anything.  No McDonalds, no Starbucks, lots of not-much.  There is now an overlay of growth over everything.  An area that was once just a huge wooded hill across from the parking lot where I had my summer job before college was flattened and turned into a giant complex of shopping centers, restaurants, and movie theaters.

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Moping and Coping

The weather here is typical for April in Colorado.  Gorgeous and sunny one day, snowing and freezing and gray the next.  After sixteen years here I should be used to the volatility, but it still catches me off guard and throws me off my game...

I have a fairly serious case of Seasonal Affective Disorder, and lack of sunlight does bad things to my state of mind in the fall and winter, probably more so in the springtime when I am not as diligent about my SAD management.  A few sunny days and I stop thinking I need my routine.  Adding PD stress to the mix is a recipe for disaster.

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I'm No Superman

The inspiration to write does not come easily to me. Participating in a blog with my wife is almost ironic on some levels; not a great sharer, not a great writer, and my follow through on such things leaves something to be desired. Figuring out what to write about, also, is a challenge, one that I'm not sure I will always be up to. My guess is my wife will post more than I will. My guess is I will respond to comments, feedback (and our soon to come forum) and do admin tasks more than she will. Like all things, this will be a balancing act and delegation of duties, not unlike our marriage ; )

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April 18, 2018 - Titles and Labels

When I started imagining what our blog would look like and what people might be interested in hearing about, I began thinking about our entry into this new reality and how our vision of ourselves was changing daily, hourly.  I began thinking about the titles and labels… We all have a thousand titles and labels that get assigned to us as we go through life.  Some of them are tossed at us by others, unwanted, and we deal with them as we are able.  Some we will reject, some we will embrace.  Some of them we choose, and we carry them proudly through life – mom, wife, best friend.  Some we also choose, though not as happily – ex-wife, former employee, etc.  These are all things that describe who we are, who we were, what kinds of choices we have made in life and what sort of experiences we have built.

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